Erin continues to amaze, with a few hiccups. To start, her breathing tube was removed yesterday after being in the ICU for only two hours. It is not a pretty sight to see your child silently begging to have the tube removed, silent because they can't speak. Luckily it was felt that she was doing so great that they could take it out. Had she had the original planned surgery, it would have been in for 24 hours or longer, and she would have remained sedated for that time period.
Her biggest struggle has been thirst and hunger. As I am learning, the anesthesia puts your digestive system to sleep, and it takes time to wake up and recover. She couldn't keep any water down for most of the day, and still is having some difficulties. Hearing your child beg for water and promising that she will try really hard not to throw up is heart breaking. I spent the night in the room, and she only slept about two hours. She is complaining of discomfort from all of the tubes and wires she has in her.
She brightened up when Mommy came back around 6 am. She is eating jello and the ever present Popsicle, and trying to keep liquids down.
Dr Dearani and entourage visited this morning and was visibly happy over how well she is doing. The plan now is to start pulling lines, and tentatively move her out of ICU today into a private room. If all goes well, she could be out of the hospital in the Sunday/Monday timeframe. Given the fact that we thought she would be in the hospital for up to two weeks, this is astounding.
I will report more as we know it. And as always, we are humbled by the outpouring of support from so many friends and family. It is incredibly helpful and means so much. Thank you to each of you.
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