I have been asked by a number of you to update the blog to let people know how Erin is doing. In short, amazing. She has proven to be somewhat of a miracle by managing to avoid the initial surgery to put a shunt from her heart to her lungs to help get enough oxygenated blood. That surgery is now off the table. She will definitely need open heart surgery at some point to reconstruct and fix the damaged portions of her heart. The what and when of that surgery will be determined by her. It could be in six weeks, six months, or six years. We don't know how extensive the surgery will be.
What we do know is that she is doing remarkably well. Her unaided oxygen sats are in the mid 80's every night. She sleeps extremely well, waking up to eat at around 2 am and then again around 5:30. She has a fussy period between 7 - 9 pm, but even that is abating. She is an absolute joy.
She is beginning to interact on a consistent basis, smiling and laughing regularly. She makes a lot of noise, giving us the notion that she might be quite a talker someday. Her pediatrician observed her playing with me during her appointment last week and noted that her interactions where really quite advanced for an 8 week old baby. It seems surreal to write that she is only 8 (now 9) weeks...it seems like a lifetime ago when she was born.
In any event, her are some photo's to give you an idea of what she looks like today, without all the "equipment" on her.
1 comment:
Thank you for the update blog, Jim. You have done your usual great job with photos and dialog. I have alerted all our friends. They have all been waiting for more.
We can see how much love and caring you and Sheila have for our sweet little Erin. You can tell we're very proud grandparents...and parents!
Sandra and Joe
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