Erin seems to be in good shape today. Her overnight was good, other than a few crying spells, and her blood gases continue to be good. Last night, she received a new neighbor Alexander, who was born yesterday. He seemed find until they listened to his heart to find out that one side wasn't working. Alexander and his dad arrived yesterday at about 9 pm, in a fashion that reminded me of our arrival three long weeks ago today. In the entire contingent, between the Children's staff, the transport team, and family, there must have been 15 people next to our crib. Erin decided to let the world know how pissed off she was over her food restriction, and was crying uncontrollably for about 15 minutes. I finally got her calmed down by standing and holding her, and she was asleep when I left.
We have asked the doctors to discuss with cardiology increasing her food intake today, but haven't heard back yet. For now, things are status quo.
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